Visibility Action 2018

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19 posterboards and a banner heading to Sunderland tonight ready for the Tyne & Wear ME Support Group’s Gathering and Photo-call at the foot of Penshaw Monument 1.30pm -2.30pm on Saturday May 12th 2018.

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And, from dusk onwards (9pm), the monument will be lit up in blue to acknowledge M.E. Another photo opportunity for those who are still up and are able to be there.

Have a great Visibility Action!

withΒ Joanne Hellens.

Too Ill To Be Here

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“…one of the biggest medical scandals of the 21st century” – Carol Monaghan MP, PACE Debate Westminster Hall February 5th 2018

β€’ MISSING since 1979
β€’ BED-CONFINED since 1987
β€’ TOO ILL to be helped into a Millions Missing t-shirt
β€’ TOO ILL to tolerate having a better quality photograph taken
β€’ TOO ILL to begin my 40th year of total & absolute medical
neglect
β€’ And, TOO ILL TO BE HERE

Light Up The Night 2017

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Over 55 people gathered on the Quayside at dusk on May 12th.Β We had amazing support for a fantastic event!

Lighting up the Night for the 25th Anniversary of World ME Awareness Day May 12, 2017

For Β ME, Β FMS, Β MCS and Lyme

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“Going” to my Light Up the Night Newcastle Upon Tyne & Gateshead! UK 2017 Event, on the 25th Anniversary of World ME Awareness Day, May 12, 2017.
So many thanks to my fabulous team of PAs and amazing friends for pulling this off!

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Jo Hellens introduces the speaker: Pauline Donaldson, at the Light Up the Night Newcastle Upon Tyne & Gateshead! UK 2017 event. May 12, 2017.

Watch the video here!

Mrs Donaldson read a message from the initiator of the event – very severely affected bedbound campaigner, Anita Roddam, who has been living with me for 38 years.
(Photo Phil Benton)

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2 Parliamentary Candidates (PCs) Ian Mearnes and Liz Twist, holding the MAIMES “Adopt an MP” Pledge forms. 2 non-attending PCs have also pledged their support, should they be successful in the general election. At Light Up the Night Newcastle Upon Tyne & Gateshead! UK 2017.Β On May 12, 2017, the 25th Anniversary of World M.E Awareness Day.Β (Photo: Phil Benton)

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Speaker, Pauline Donaldson and Parliamentary Candidates: Ian Mearnes and Liz Twist holding the MAIMES “Adopt an MP” Pledge forms at the Millennium Bridge, Gateshead/Newcastle upon Tyne. 2 more non-attending PCs have pledged their support for our campaign, should they be successful in the general election.
(Photo: Phil Benton)

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Our young campaigners, Laura and Emily, handed out leaflets at the Light Up the Night Newcastle Upon Tyne & Gateshead! UK 2017 event, May 12th. They did a great job! Looking forward to seeing you both next year!

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18447426_432474603782571_5878820352438508365_n“TOO ILL TO BE HERE!” – three very severely affected PWME are represented at the Light Up the Night Newcastle Upon Tyne & Gateshead! UK 2017 event.Β Millions ARE Missing

The Gateshead Millennium Bridge lit in purple for Fibromyalgia Awareness and green for Multiple Chemical Sensitivity and Lyme Awareness. May 12, 2017

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The Tyne Bridge, Newcastle upon Tyne, lit in Blue for Awareness of Myalgic Encephalomyelitis, on the 25th Anniversary of World ME Awareness Day

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